Currently in my late 20’s, I have always been a bright and bubbly young woman who (up until April 2013) was completely engrossed in trying to save the environment from a local level and live a healthy, active life. I was enjoying all the challenges and fun activities life was throwing at me, both professionally and at home with my husband, E. Overall, I was trying to enjoy life as much as I could.
Unfortunately, life had other plans for me.
The morning of 9 April 2013, I was woken early by extreme stomach cramps. I tried everything I could think of to stop them without waking E up, but they wouldn’t go away. I decided (after taking some panadol) that I’d go to work and see if they stopped, but by the time I was dressed I’d woken E up and he told me to go to the doctors. So I did…
I still thought at this stage that I’d be heading to work after visiting the doctor, but he told me to go straight to emergency at the hospital and that’s where I ended up spending the whole day.
This was a start of something that has still not been completely resolved. The doctors at the hospital couldn’t work out what was wrong with me so they sent me home saying to come in if it got worse… it didn’t but it wasn’t getting better either, and I was suddenly extremely fatigued (sleeping around 22 hours a day) and all my muscles were sore as well.
Eventually, after seeing multiple GPs and Specialists, I had a diagnosis of “Chronic Fatigue Syndrome / Chronic Pain” (Fibromyalgia was mentioned but not diagnosed) and “Pelvic Congestion Syndrome due to varicose veins on my uterus”.
Where am I at now?
I have finally found a GP that I like and who works with me, but I’m still searching for the right specialist and an official diagnosis that insurance companies will accept.
We have been trying different medicines and alternative treatments to minimise the impact of each of these conditions but so far we’re still searching for the answers.
People who know me would confirm that I am the type of person who always sees the positive in any situation. I am viewing this situation as an opportunity to explore activities I’ve always wanted to try but was always “too busy”, things like card making, sewing, baking, yoga and meditation, and raising awareness for invisible illnesses through Foggy Frog and Friends.
How can you participate?
I’d love to learn more about you as well and what journey you are on, whether it’s a life with chronic illness or not. You can do this by commenting on posts or email me at firstname.lastname@example.org.
Thank you for visiting.